When asked what rules health IT vendors should follow when reselling the de-identified data of patients treated by their provider clients, one-third of respondents said that they should never do it in the first place. What’s more, it doesn’t seem likely that Epic would find it easy to create a commercial marketplace, either, if a recent poll backed by health IT site is any indication. When it comes to such data, providers have every reason to be cautious about sharing it, as it raises a myriad of commercial and regulatory concerns. Meanwhile, few are particularly eager to share their data, even if that gives them greater access to other patient health datasets. ![]() This points to one of the seldom-mentioned but critical problems in creating such health datasets, which is that for most potential participants, it’s much easier to visualize how the great benefits such data sharing could be than actually making it happen.Īfter all, most provider organizations – especially academic medical centers with research programs – would love to have better access to patient data, as it helps to support their research programs. As this time of last year, when Moore blogged about the UGM event, Epic was having trouble getting its customers to participate in its data-gathering efforts. In reality, though, Epic has been finding that it’s harder than it looks to pull together multi-party patient datasets. In theory, the virtual system could embrace all of the 200 million records managed by Epic clients, and as long as the data was properly de-identified, the data could be shared freely with appropriate parties. Epic’s broader enterprise analytics and population health offering includes its Cogito Analytics Suite, AI and machine learning capabilities and its Healthy Planet population health platform. One core element of Epic’s emerging virtual system is the Cosmos platform, a hosted data warehouse built on the Caboodle stack, which comes with a hosted version of its Slicer-Dicer analytics tools. However, getting there is proving to be tougher than the company expected.Īccording to John Moore of Chilmark Research, who attended Epic’s 2018 UGM conference, CEO Judy Faulkner spoke there of building “One Virtual System Worldwide.” This virtual system, Faulkner told attendees, will help researchers generate clinical science breakthroughs drawing on the de-identified data of all of Epic’s clients. In recent times, Epic has expanded its vision from being merely an EHR vendor to offering access to a gigantic patient health dataset culled from a broad range of providers.
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